SİYAH İNCİLERE VİDEO ÇAĞRISI
Sağlıklı Birey, sağlıklı toplum için "siz de ses verin" diyerek nadir çağrı kampanyasını başlattık. Senin gibi tüm nadir bireyleri bu özel projemize davet ediyor ve "sen de videonu" gönder diyoruz.
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WHAT IS RARE DISEASE?
Rare diseases, with the definition in Europe and other developed countries; Most commonly seen in 2000 or less, most are progressive, metabolic, chronic, and some are fatal.
- About 8000 rare diseases have been described in the literature and 80% of these diseases are genetic.
- Approximately 50% of the patients are children.
- 30% of children with rare disease can not see the age of 5 years. The main reason for this situation is; 95% of rare diseases are not treated.
- Rare diseases are seen in 1 out of every 16 people in Turkey; Turkey 5 million, about 350 million people in the world has a rare disease.
- Each disease has its own characteristic. Due to this feature, special care and treatment methods, medicines, consumables, special foods and medical devices are needed.
- Although the diseases are rare, the results are very severe for the patient, his / her family and the society.
