Albinism Association, since 2013, to raise awareness on Albinism, to gain the rights of the individuals and families of albinism, to improve the quality of life, Albinism to perform the necessary work for the diagnosis and treatment of our country in order to realize the work in Turkey and abroad, a non-profit civil society subsidiary.
Kifder - Cystic Fibrosis Family Assistance and Solidarity Association was founded in February of 2012 and the coming together of the relatives of patients, advocacy and rights-driven search spread to a dernektir.türkiye general, is the only organization in the field working with patient representation system. It is a solution-oriented association in cooperation with official institutions, NGOs and other stakeholders. It is working for the use of new therapies developed in cooperation with the central staff, representatives and volunteers in our country, payment of devices that are part of the treatment and the creation of fully equipped centers. It contributes to the production of policies for the better quality and long life of patients with cystic fibrosis. It will continue to contribute to this developing and changing world.
MPS LH Association was established in 2009 by relatives of patients.
Our aim is to ensure that the patients and their relatives are in solidarity, to feel that they are not alone, to overcome difficulties together.
Our aim is to protect and improve the rights of our patients in economic, social, cultural, legal, vocational, education and health issues and to help our patients to live a better quality life. One of our most important goals is to raise awareness in society about these diseases.
On 03/05/2018, collecting patients under one roof, raising awareness about the disease, informing and informing the society about rare diseases, moral support, the donations collected and the support of the families in need of medical materials and medical devices, was established for the purpose.
The association established by the patients and their relatives in 2008 and lasted for 6 years. The association was founded in 2018 after the Pulmonary Hypertension Association, which was terminated after the dissolution of the financial resources in 2014.
The Association for Fighting SMA Disease was established on 17 April 2017 in Eskişehir with the participation of patient relatives and volunteers. SMA patients, patients, relatives of patients within. SMA patients; is an association that works for the benefit of sick individuals in order to ensure their active participation in community life.
My Face Happiness Association was founded in 2018 for individuals with facial anomalies. It is the first and only association established by families in this area. The Association aims to contribute to the social consciousness in which people are accepted and evaluated as they are, not by their appearance.
Our association was established for individuals with facial anomalies and different facial features. Syndromes related to other facial anomalies, especially TreacherCollins syndrome, include individuals with microtia, cleft lip and palate, and congenital, deformed or later deformed face